The Chiari Voices Foundation | Registering 501(c)(3) Nonprofit (IN PROGRESS)
Version 1 | Last Revised: February 1, 2026
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The Foundation is an advocacy organization, not a healthcare provider. WE DO NOT PROVIDE MEDICAL ADVICE. Any information, including data from our Symptom Tracker, is for personal reference only. Treatment decisions and clinical pathways must be made in direct consultation with a licensed medical professional. The Foundation does not urge or endorse specific medical pathways; adhering to your doctor's feedback is mandatory for your health safety.
As a vendor of personal health records (PHR) via "Chiari Connects," we comply with the FTC Health Breach Notification Rule (16 CFR Part 318). In the event of unauthorized acquisition of your unsecured identifiable health information, we will notify you and the FTC within 60 calendar days (or sooner if mandated by state law).
We do not knowingly collect data from children under 13 without verifiable parental consent. Pursuant to 2026 Online Safety Acts, any user under 18 (or their legal guardian) may exercise the "Eraser Button" right to have all identifiable personal and medical data permanently purged from our servers (Supabase/Firebase).
The Foundation utilizes Automated Decision-Making Technology (ADMT) and AI to assist in symptom analysis. These tools provide probabilistic insights and are never a substitute for a human physician. You have the right to request information about the logic behind any AI-driven recommendation provided by our platform.
Organized exclusively for charitable purposes under Section 501(c)(3), no part of the Foundation’s net earnings shall inure to the benefit of any private individual. The Foundation does not participate in political campaigns or prohibited lobbying. Violation of this non-partisan policy by users in Foundation forums will result in immediate expulsion.
The Foundation strictly adheres to the Federal Anti-Kickback Statute. We do not receive compensation for specialist referrals. Users are prohibited from using this platform to facilitate "patient brokering" or insurance fraud; all suspected violations will be reported to the relevant authorities.
Our directory of specialists and support groups is for informational convenience only. LISTING DOES NOT CONSTITUTE ENDORSEMENT. We do not verify medical licenses or clinical competency. You agree that any relationship formed with a provider is solely between you and that third party; the Foundation is not liable for medical malpractice or negligence by entities listed.
Pursuant to the Federal Volunteer Protection Act of 1997 and Florida Statute §768.1355, the directors and officers (including Derek Lucius Crosby and Eric Crosby) are shielded from liability for acts or omissions resulting in harm if they were acting within the scope of Foundation responsibilities and the harm was not caused by willful or criminal misconduct.
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