Chiari Resources in USA
Connecting patients in USA with verified specialists and local support.
View Directory CriteriaChiari Support Groups
Caregivers of Chiari Warriors
A grassroots group specifically for parents and spouses to vent and share tips.
Virtual
VisitInspire Chiari Community
One of the largest health communities, partnered with NORD for verified discussions.
Virtual
VisitChiari Bridges
A grassroots patient-led group focused on emotional support and navigating the "invisible" aspects of the disease.
Virtual
VisitZipperhead & Chiari Support
A casual "water cooler" community for day-to-day talk about symptoms and venting.
Virtual
VisitRelated Support (EDS, POTS, Pain)
About Our Chiari Malformation Directory
Directory Inclusion Criteria
To be listed as a 'Verified Specialist,' a provider must:
- Be a board-certified neurosurgeon or neurologist.
- Explicitly list Chiari Malformation as a treated condition on their official practice website.
Verified Specialists
Finding the right neurosurgeon is critical. Our directory lists only verified specialists recognized by major medical advisory boards.
Support for EDS & Syringomyelia
Chiari rarely travels alone. That’s why our state resources include support groups for Ehlers-Danlos Syndrome (EDS), POTS, and Chronic Pain.
Vetting and Selection Criteria
Our goal is to connect you with the highest quality care and community support. To maintain the integrity of this directory, every entry is meticulously vetted based on the following standards:
Verified Expertise
We only list neurosurgeons and specialists whose professional medical websites specifically mention treating the Chiari Malformation condition as a primary area of focus.
Active Leadership
Priority is given to clinicians and advocates who serve as board members or active participants in recognized Chiari advocacy and research organizations, ensuring they are at the forefront of the latest medical advancements.
Community Vetting
In addition to professional credentials, our list includes specialists who are frequently mentioned and highly recommended by the patient community for their compassionate and attentive approach to care.
Commitment to Education
We prioritize groups and providers who demonstrate a commitment to patient empowerment through evidence-based education rather than general awareness alone.
Disclaimer
The Chiari Voices Foundation provides this directory as a community resource and does not provide direct physician referrals. We do not verify the ongoing clinical competence of listed specialists and are not responsible for the care they provide. We encourage all patients to independently verify a provider's board certification and credentials before their appointment.