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Chiari Resources in NY

Connecting patients in NY with verified specialists and local support.

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Verified Specialists

Verified Chiari Specialist

Dr. Philip Stieg

Weill Cornell Medicine

New York, NY

Adult Neurosurgeon

Verified Chiari Specialist

Dr. Mark Souweidane

Weill Cornell Medicine

New York, NY

Pediatric Neurosurgeon

Verified Chiari Specialist

Dr. Caitlin Hoffman

Weill Cornell Medicine

New York, NY

Pediatric Neurosurgeon

Verified Chiari Specialist

Dr. Petra Kula

The Chiari Institute

Great Neck, NY

Neurologist

Verified Expert Medical Advisory Board Verified Chiari Specialist

Dr. Jeffrey Greenfield

Weill Cornell Medicine

New York, NY

Pediatric & Adult Neurosurgeon

Verified Chiari Specialist

Dr. Richard Anderson

Columbia / NYU Langone

New York, NY

Pediatric Neurosurgeon

Verified Chiari Specialist

Dr. Roger Kula

Chiari EDS Center

New Hyde Park, NY

Neurologist

Verified Expert Medical Advisory Board Verified Chiari Specialist

Dr. Paolo Bolognese

Chiari EDS Center

New Hyde Park, NY

Adult Neurosurgeon

Chiari Support Groups

NYC Chiari Meetup

New York

Visit

Bobby Jones CSF Virtual Support

Virtual

Visit
National Organization
Virtual (Zoom)

Bobby Jones CSF

They host professionally moderated monthly support meetings where patients can ask experts questions.

National

Visit

Related Support (EDS, POTS, Pain)

Dysautonomia International - New York

New York

Visit

Metro NY EDS Support

New York

Visit

U.S. Pain Foundation

National

Visit

Pain Connection NYC

New York

Visit
Facebook Group

Dysautonomia International - NY

Official state chapter for POTS/Dysautonomia support and physician lists.

Virtual

Visit

About Our Chiari Malformation Directory

Directory Inclusion Criteria

To be listed as a 'Verified Specialist,' a provider must:

  • Be a board-certified neurosurgeon or neurologist.
  • Explicitly list Chiari Malformation as a treated condition on their official practice website.

Verified Specialists

Finding the right neurosurgeon is critical. Our directory lists only verified specialists recognized by major medical advisory boards.

Support for EDS & Syringomyelia

Chiari rarely travels alone. That’s why our state resources include support groups for Ehlers-Danlos Syndrome (EDS), POTS, and Chronic Pain.

Vetting and Selection Criteria

Our goal is to connect you with the highest quality care and community support. To maintain the integrity of this directory, every entry is meticulously vetted based on the following standards:

Verified Expertise

We only list neurosurgeons and specialists whose professional medical websites specifically mention treating the Chiari Malformation condition as a primary area of focus.

Active Leadership

Priority is given to clinicians and advocates who serve as board members or active participants in recognized Chiari advocacy and research organizations, ensuring they are at the forefront of the latest medical advancements.

Community Vetting

In addition to professional credentials, our list includes specialists who are frequently mentioned and highly recommended by the patient community for their compassionate and attentive approach to care.

Commitment to Education

We prioritize groups and providers who demonstrate a commitment to patient empowerment through evidence-based education rather than general awareness alone.

Disclaimer

The Chiari Voices Foundation provides this directory as a community resource and does not provide direct physician referrals. We do not verify the ongoing clinical competence of listed specialists and are not responsible for the care they provide. We encourage all patients to independently verify a provider's board certification and credentials before their appointment.

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